Shelli Janning – Program Coordinator

My name is Shelli Janning. I have a wonderful husband and two children, Brooke and Jerzie. Brooke is my youngest and is hard of hearing. She currently has Single Sided Deafness. She was diagnosed with Mondini and EVA, in both ears although she has typical hearing in her left ear at this time.  Brooke was identified late although I believe her hearing difference was from birth.  Brooke wore a hearing aid from when she was 20 months old until she was around 11.  She had a catscan at 9 which showed that she had EVA and Mondini.  She had a progressive hearing loss which resulted in her moderate to severe hearing loss to decline to profound in that ear.  Brooke was approved for and received a Cochlear Implant when she was 13.  Brooke has been mainstreamed in Blair Community schools with an IEP, and she is very bright and athletic.   Brooke is an amazing advocate for herself; sometimes even advocates for things that are different than what I feel is best (insert fake smile).  I was a Services Coordinator with the Early Development Network for 11 years until I decided to devote more time to families who have children who are deaf or hard of hearing.  Since we became aware of Brooke’s hearing, we became more involved with Hands & Voices and other organizations that support families who have children who are deaf or hard of hearing.  I am a Hands & Voices board member and the Program Coordinator with the Hands & Voices Guide by Your Side (GBYS) program, I also serve as a Parent Guide. The other part of my job is to follow up for the Nebraska EHDI program.   I truly understand the importance of networking with other families who are experiencing the same challenges. I enjoy watching my kids play soccer and softball and dapple in the fine arts.